www.archive-org-2012.com » ORG » F » FANCONICANADA

Choose link from "Titles, links and description words view":

Or switch to "Titles and links view".

    Archived pages: 19 . Archive date: 2012-10.

  • Title:
    Descriptive info: ..

    Original link path: /
    Open archive

  • Title: Fanconi Canada
    Descriptive info: The Canadian Fanconi Anemia Research Fund.. Francais.. Home.. Ontario Fundraiser.. About Fanconi Anemia.. Research.. Families.. Fanconi Canada.. Donate.. Privacy.. Contact Us.. Give Them Tomorrow!.. Fanconi Canada is a registered charity that funds research in Canada into an effective treatment and, ultimately, a cure for Fanconi anemia and serves as a support network for affected Canadian families.. NEWS.. Fanconi Canada is pleased to announce the following partnership awards in FA research co-funded and administered by the Canadian Institutes of Health Research:.. Doctoral Research Award of up to $35,000 per annum for up to 3 years.. Competition.. 201210MDR.. Application Deadline.. 2012-10-15.. Anticipated Notice of Decision.. 2013-04-15.. Funding Start Date.. 2013-05-01.. For further details click.. here.. :.. Post-Doctoral Fellowship of up to $55,000 per annum for up to 5 years.. 201210MFE.. 2012-10-01.. 2013-04-01.. :.. TICKETS ARE NOW ONSALE FOR the 2012 Ontario Fundraiser for Fanconi Canada.. which will be held at the Terrace Banquet Centre in.. Vaughan (north of.. Toronto) on Sunday May 6.. th.. This is our major annual fundraiser to raise funds into medical research for a cure for Fanconi anemia.. Details at.. www.. curefanconi.. org.. 2010 Financial Statements are now available.. Click.. to view them.. Fanconi Canada co-sponsors Jewish Genetic Diseases Screening Clinic.. If you are of Ashkenazi Jewish descent and over 18, now is the time to be screened.. A free genetics screening clinic will be held on Sunday, November 27th,.. 10 am - 2 pm.. at Mount Sinai Hospital, 600 University Avenue, Main Floor, Lobby.. The 2009 clinic identified two carriers of Fanconi anemia type C.. Fanconi Island Red Hots raise over $16,000 in Scotiabank Toronto Waterfront Marathon/Half-Marathon/5K Charity Challenge.. Our team was:.. Tim Clarke (Captain, 5K).. Mitch Goldberg (Half-marathon).. Chris March (Half-marathon).. Mary Hopper (5K).. Charlotte Heath (finished 34.. in 5K for women 20-24).. Chris Collings (5K).. Karen Granofsky (current top fundraiser at $2,906.. 18).. Rebecca Ross (5K).. Tammy Ross(5K).. Eric Shelson(5K).. Ken Shelson (5K).. Lorne Shelson (5K).. Rosie Shelson (5K).. Sarah Shelson (5K).. Jaye Hooper of the Ottawa law firm Williams McEnery (5K).. Ashlee Barber of the Ottawa law firm Williams McEnery (5K).. Kris Dixon of the Ottawa law firm Williams McEnery (finished 7.. in 5K men 40-44).. Paulina Maher.. Terry Reid of the Toronto law firm Gardiner Roberts.. Thanks to all who donated and those who participated in the run/walk.. Online donations are still accepted at.. Fanconi Island Red Hots.. Sponsor the.. running for Fanconi Canada at the 2011 Scotiabank Toronto Waterfront Marathon Charity Challenge.. New Research Projects.. We are very excited to announce that, in partnership with the Cdn.. Institutes of Health Research, one.. Fellowship.. Award.. and one Master's Award to study FA have been granted.. Tagrid Kaddar of Université Laval, Québec is the receipient of a three-year Fellowship of 45,000 per annum co-funded with CIHR to study the role of Fanconi proteins in hematopoiesis.. Christopher St-Laurent Pedneault of the same institution has been awarded a one-year grant of $17.. 500 to study functional splice variants in Fanconi A cell and their effects on DNA repair.. 2009 Financial Statements are now available.. Project launched to study how and why some patients with FA have congenital defects that occur during gestation.. Fanconi Canada in partnership with the Canadian Institutes of Health Research, has agreed to fund a three-year doctoral research award to Meghan Larin of the University of Toronto, Department of Pharmacology and Toxicology for her project entitled Fanconi Anemia signaling and Mus81-Eme1: role in replicative stress and development.. The award is for $22,000 per year for a total of $66,000 funded equally by Fanconi Canada and CIHR.. (May 2010).. We are exposed to various substances on a daily basis that have the ability to damage our DNA.. The body has developed a number of processes to sense and remove damage to DNA.. One process involves a protein known as Mus81-Eme1 which behaves like a pair of molecular scissors that helps to snip out pieces of damaged DNA.. Mice missing Mus81-Eme1 have problems snipping out pieces of damaged DNA-the DNA of these mice is then easily corrupted by chemicals known as DNA crosslinking agents.. A similar problem exists in patients afflicted with a hereditary syndrome known as Fanconi anemia.. Patients afflicted with this disease also exhibit congenital defects that point to a role for this repair process during prenatal development.. The relationship between DNA repair and congenital defects in Fanconi anemia is not known.. The same lab recently discovered that both Mus81-Eme1 and the repair process affected in Fanconi anemia are required to make a mouse, as mice missing both processes often die before birth.. This study seeks to figure out how and why both these processes are necessary for embryonic development of mice, and how this is related to DNA repair.. Facts about stem cell and marrow donation.. Who can register?.. Any Canadian who is healthy, between the ages of  ...   donation.. TWO IN A MILLION - THE BOOK.. Two in a Million tells the story of Irish student Ben Murnane s battle with Fanconi anaemia, from his diagnosis at age nine to his bone marrow transplant nearly eight years later, and beyond.. At sixteen, Ben became the first person in Ireland to have a transplant involving the immunosuppressant fludarabine.. During three months in hospital, along with unending diarrhea and constant pain, he suffered a psychotic episode which made him unable to recognise his doctors, his parents And, before the transplant even began, he had to tell the girl he loved that he only had a fifty percent chance of survival.. Ben Murnane s book is now available for worldwide delivery on Ben s website.. All copies ordered from.. Ben s website.. are personally signed.. $135,000 Awarded to Laval University Researcher.. On May 16th, the Cdn Institutes of Health Research/Fanconi Canada Post-Doctoral Fellowship in FA Research was awarded to Julien.. Vignard of Laval University in Quebec City for his project studying the role of FA proteins in DNA double-stranded break repair.. Vignard will be working under the supervision of Dr.. Jean-Yves Masson and is the second such Fellowship held by a member of his laboratory.. 2008 Toronto Fundraiser Raises Over $83,000.. Our 8th annual Greater Toronto Area Fundraiser for Fanconi Canada was.. held April 27th - a dinner and silent auction for which we sold 500.. tickets and had 400 guests in actual attendance.. Our preliminary.. figures suggest we raised over $83,000 for FA research in Canada.. Thank you to everyone who attended and supported this major annual fundraising event.. THANK YOU - Your $10 Grew into $115,000 for FA Research.. Thanks to everyone who donated.. The unofficial results show Fanconi Anemia Research Fund finished in third place (top four charities each get $50,000), The actual donors contributed over $65,000 which means $115,000 U.. S.. for FA Research Fund.. FA Research Fund, our U.. counterpart, will use this money to supporting leading edge research into FA.. FA Research Fund finished in second place but in terms of dollars raised, FA Research Fund came first.. Thank you for making the difference.. Open Mike Night Raises $850 for FA Research.. Our Open Mike Talent Night on November 7th at the Purple Pig Famous Smokehouse Toronto raised an amazing $800 for medical research.. Thanks to our featured entertainers Gavin Tighe, Richard Schiller and John Marle and cameo performers Jeff Simpson and Mitch Goldberg.. Thanks to all who supported us in person and in spirit.. $66,500 grant to investigate FA/Breast Cancer linkages.. Fanconi Canada has provided a $66,500 grant to Dr.. Francine Durocher of the Cancer Genomics Laboratory at Laval University to explore the potential linkage between FA and the unexplained high incidence of breast cancer occurring in a group of French Canadian families.. $440,000 available for FA Research.. The Canadian Institutes of Health Research and Fanconi Canada recently announced a new series of partnership award competitions in FA Research at the Masters, Doctoral and Post-Doctoral levels.. for more details.. Financial Statements.. for the most recent Financial Statement from Fanconi Canada.. Fanconi Canada Fundraiser Co-Chairs Recognized.. Putting together the annual Fanconi Canada Toronto fundraising dinner has become a massive undertaking involving coordinating donations, managing the silent auction details, selling tables, arranging entertainment, menus, seating plans, and overseeing a team of dedicated volunteers.. It involves countless hours, tireless dedication and boundless energy.. In recognition of their outstanding achievement, the Government of Ontario has honoured co-chairs Karen Granofsky and Jack Daiter with Volunteer Service Awards.. In its six years, the fundraiser has raised over $200,000 to help support medical research.. Lorne Shelson, president of Fanconi Canada, said, the fundraiser s success is the direct result of Karen and Jack s commitment and leadership.. This year s successful gala raised $68,000 alone.. Karen and Jack were among 193 Richmond Hill residents recognized by Ontario Citizenship and Immigration Minister Mike Colle and Finance Minister Greg Sorbara for making a difference in the lives of others.. Over the past 20 years we have celebrated the dedication and outstanding achievement of approximately 100,000 volunteers for their community service, said Colle.. These are the people who give back to their communities in so many ways, from driving seniors to coaching young people.. This is the twentieth anniversary of the Volunteer Service Awards.. The theme is Volunteers Build Communities.. Volunteers are critical to York Region and they are the lifeblood of every community in Ontario, said Ontario Finance Minister and member for Vaughan King Aurora, Greg Sorbara.. They make an outstanding personal investment in their communities and these awards are just one way to show our appreciation for their contributions.. Reed Magazine.. Read this.. article.. from.. Reed.. , the magazine of Reed College, about an Oregon family living with Fanconi Anemia.. CRA registration number 868951724 RR 0001.. 2005 FA Canada..

    Original link path: /en/
    Open archive

  • Title: Bienvenue
    Descriptive info: FANCONI CANADA.. Accueil.. Anémie de Fanconi.. Notre organisation.. Infos AF.. Comment aider.. L AF dans le monde.. Les visages canadiens de l AF.. Nous contacter.. FAMILLES.. Page d accueil familles.. MEDECINS ET CHERCEURS.. Infos pour les médecins et chercheurs.. Virtual Office of.. This page uses JavaScript, so you need to get a browser such as Netscape Navigator 2.. 0 or later or Microsoft Internet Explorer 3.. 02 or later that supports JavaScript.. If you have JavaScript disabled in your browser, you will need to turn it on in order to use this Web Site.. OFFREZ-LEUR  ...   NOTRE MISSION.. Fanconi Canada est une organisation caritative qui a pour mission de financer la recherche médicale au Canada dans le but de trouver un traitement efficace et, en définitive, un remède pour l anémie de Fanconi.. Nous servons aussi de réseau de soutien pour les familles canadiennes touchées par la maladie.. Organisation inscrite sous le numéro 868951724 RR 0001 (auparavant 890840549 RR 0001) auprès de l Agence des douanes et du revenu du Canada.. Merci de votre visite.. Canadian Fanconi Anemia Research Fund / La Fondation Canadienne de Recherche de L'Anemie de Fanconi.. |..

    Original link path: /fr/
    Open archive
  •  

  • Title: Fanconi Canada
    Descriptive info: What is FA?.. How is FA diagnosed?.. What Treatments are there for FA?.. Who is Fanconi?.. Fanconi-Related Birth Defects.. Fanconi Anemia (FA), first described in 1927 by a Swiss pediatrician Guido Fanconi, is the most common of the inherited anemias that lead to progressive, severe bone marrow failure, also known as aplastic anemia.. The effects of the disease are devastating, leaving patients weak, prone to severe bleeding due to insufficient blood clotting and susceptible to infection.. FA is a genetic disorder that occurs equally in males and females and is found in all ethnic groups.. Though considered primarily a blood disease, it may affect all systems of the body.. A Fanconi Anemia patient often, but not always, has other physical defects detectable at the time of birth ranging from minor to serious.. Patients are also at an increased risk for developing leukemia and other cancers.. Many children do not survive to adulthood.. Back to Top.. FA usually reveals itself when children are between the ages of 3 and 12, but in rare cases no symptoms are present until adulthood.. Some babies are diagnosed at birth but some FA patients undoubtedly are never correctly diagnosed.. The most common test to detect FA is called the Chromosome Breakage Test.. The chromosomes in the cells of FA patients when studied in the lab, break and rearrange easily.. Scientists do not yet understand the reason for this chromosome breakage, but can use it as a diagnostic test for the disease, if FA is suspected.. This test involves just a blood sample from the patients where the stability of the chromosomes under the addition of destructive agents will indicate FA.. Currently, there is no cure for FA.. However, the following treatments are currently available to treat the bone marrow failure:.. Regular transfusions; androgens (male hormones) with or without steroids; blood growth factors (such as G-CSF).. While these can cause remission of the bone marrow failure,  ...   Alice von Grebel, daughter of the president of the district court of Zurich.. He went to school in Schiers (in the German speaking part of Switzerland) and Zurich and studied medicine in Lausanne, Bern and Zurich, obtaining his medical doctorate in 1919.. From 1920 to 1926 he trained in paediatrics under Emil Feer-Sulzer (1864-1955) at the Kinderspital (the university children's hospital) in Zurich, and then gained more experience in academic centres in Europe until 1929.. That year he became director of the Children's Hospital and professor of paediatrics at the University of Zurich.. Fanconi is regarded as one of the founders of modern paediatrics and a great innovator in applying the scientific methodology of biochemistry and physiology to the investigation of clinical problems.. In 1930 he gave a paper to the 2nd International Conference of Paediatrics in Stockholm in which he advocated the use of raw fruit in the treatment of acute diarrhoea.. One discussant told him he was crazy, but this led to the development of pectin as an anti-diarrhoeal agent.. One of his main concerns was the problems of children in the underdeveloped countries of the world.. Fanconi was president of the International Pediatric Association from 1947 to 1950, and secretary general 1951-1967.. In 1945 he founded the journal Helvetica Paediatrica Acta.. His name is attached to 16 conditions in addition to Fanconi anemia.. Birth defects are found in the majority of FA patients.. These defects can involve any system of the body.. The defects are sometimes many in number, or very few.. There seems to be no predictability about the types of anomalies, even within families where more than one child has FA.. Among the more common birth defects are the following:.. Short stature.. Thumb, hand and arm anomalies.. Skeletal abnormalities of the hip and spine.. Kidney problems.. Skin discoloration.. Small head or eyes.. Low birth weight and failure to thrive.. Digestive tract abnormalities.. Heart defects.. Mental retardation..

    Original link path: /en/inf31.php
    Open archive

  • Title: Fanconi Canada
    Descriptive info: Research Supported.. Research into FA is being performed worldwide by many committed researchers.. Canadian researchers have played a leading role in FA research, notably the cloning of the first FA gene and the development of a mouse model by.. Manuel Buchwald.. and his team at the Hospital for Sick Children.. Since 1984, Fanconi Canada has raised money for the following projects:.. Centre hospitalier de l'Université Laval (Québec).. to study the role of.. C-terminal binding protein in FA.. $ 62,250 to the Hospital for Sick Children to study the role of FA proteins in DNA repair.. $ 62,250 to Centre Hospitalier Universitaire de Quebec to study the characterization of the hematopoietic stem cell defect in the FA type 'C' gene mouse model.. $ 45,000 to the Hospital for Sick Children to launch the Cdn.. Inherited Bone Marrow Failure Registry.. $ 25,000 to Centre Hospitalier Universitaire de Quebec to carry out research into Understanding Fanconi anemia through  ...   us that they could move faster with greater resources.. Fanconi Canada is committed to fuelling the pace of research to help save our affected kids and adults.. Together we will give them a tomorrow!.. Nearly $450,000 for FA Research.. The total available funding is $442,000.. The application deadlines appear below.. For more information, visit.. cihr.. ca.. Fellowship Award.. 2007-10-01.. Application Notice of Decision.. 2008-04-15.. 2008-04-01.. The maximum amount awarded for a single award is $55,000 per annum for up to five years.. CIHR anticipates that one award will be funded through this competition.. Doctoral Research Award.. 2007-10-15.. 2008-04-15.. 2008-05-01.. The maximum amount awarded for a single award is $22,000 per annum for up to three years.. CIHR anticipates that approximately two awards will be funded through this competition.. Master s Award.. 2008-02-01.. 2008-07-15.. 2008-09-01.. The maximum amount awarded for a single award is $17,500 per annum for up to one year.. Grant Applications.. Research Grant Application..

    Original link path: /en/inf81.php
    Open archive

  • Title: Fanconi Canada
    Descriptive info: Information and links for Canadian FA families.. Click on the following categories for useful information and support for Canadian FA families.. Family Websites.. FA Worldwide.. Canadian FA-related organizations.. Online Publications.. Medical Information You Can Order.. Medications Used to Treat FA.. Email Groups.. Fanconi Canada Newsletters.. Canadian Inherited Marrow Failure Registry.. National Cancer Institute Study.. Canadian Family Websites.. Charlotte Fecteau (Oct.. 14, 1994 - Jan.. 5, 2005).. Charlotte began her journey into transplant as a beautiful, bright 8 year old in Grade 3 from Moncton, NB.. She was diagnosed at age 5.. Charlotte's first bone marrow transplant in April 2003 was not successful.. She had a second transplant in August 2003 that never worked well enough to be considered a true success.. Two months later, Charlotte suffered neurological damage from undetermined causes that left her unable to walk, talk and cognitively impaired.. She relearned how to walk but her sweet voice was never to be heard again.. Isabelle Lamoureux.. Isabelle was diagnosed at birth with FA underwent a bone marrow transplant at Hopital Ste-Justine in Montreal in 2003 when she was 3 years old.. Aaron Shelson.. Aaron underwent an unrelated bone marrow transplant for Fanconi anemia in 2003 in Minneapolis when he was nine years old.. Sylvie Lauzier.. In August 2002, Sylvie underwent an unrelated bone marrow transplant in Toronto.. Fanconi Anemia Research Fund (U.. ).. UK FA Support Group.. Deutsche Fanconi-Anämie-Hilfe e.. V (Germany).. Fanconi Anemia Comprehensive Care Center.. Association Française de la maladie de Fanconi.. National Cancer Institute Study on Fanconi Anemia and Cancer Risk.. Fanconi Anemia at Rockefeller University.. Tunisian Fanconi Anemia Registry.. Fanconi Anemia Ireland.. Fanconi Anaemia South Africa.. Fanconi Anaemia Australia.. Steven's Association Moonrise (Belgium).. Werkgroep fanconi anemie (Netherlands).. ASOCIACIÓN ESPAà OLA DE ANEMIA DE FANCONI.. Canadian Blood and Marrow Transplant Group.. The Canadian Blood and Marrow Transplant Group (CBMTG) is a national, voluntary, and multi-disciplinary organization providing leadership and promoting excellence in patient care, research and education in the field of blood and marrow transplantation.. Aplastic Anemia Myelodysplasia Association of Canada.. The Aplastic Anemia Myelodysplasia Association of Canada (AAMAC) is a leading funder of research into bone marrow failure diseases in Canada.. A volunteer-run organization that supports patients and caregivers across the country who are living with aplastic anemia, myelodysplastic syndrome (also called MDS or myelodysplasia) and paroxysmal nocturnal hemoglobinuria (PNH).. Make a Wish Foundation.. The Make-A-Wish Foundation is the largest non-profit wish-granting organization in the world.. It exists for one purpose: to fulfill the special wishes of children under the age of 18 who have life-threatening illnesses.. Starlight Children's Foundation Canada.. Starlight Children's Foundation International helps brighten the lives of thousands of seriously ill children through wish granting and other entertainment-related activities.. Other Starlight programs include, Starlight Rooms, Fun Centres and the Kidz Activity Network which helps to put a smile back on these young hopeful faces.. Childhood Cancer Foundation Canada - Candlelighters Canada.. The Childhood Cancer Foundation ~ Candlelighters Canada is a national support and information network with international affiliation.. It is dedicated to enhancing the quality of life of children and teens with cancer, their families and all those who care for and about them.. OneMatch Stem Cell and Marrow Network.. is  ...   Physicians, Third Edition 2000.. By Lynn and Dave Frohnmayer.. Published by the Fanconi Anemia Research Fund, Inc.. , Eugene, Oregon.. Free.. Fanconi Anemia, Standards for Diagnosis and Management, 3rd edition (2008).. Free.. Add yourself to the mailing list to receive these bilingual newsletters published by Fanconi Canada.. to order any of these publications.. The following provides information on some common medications used to boost blood cell production in FA patients.. Oxymethalone.. Anadrol -50 is indicated in the treatment of anemias caused by deficient red cell production.. Acquired aplastic anemia, congenital aplastic anemia, myelofibrosis and the hypoplastic anemias due to the administration of myelotoxic drugs often respond.. Oxandrin (oxandrolone).. G-CSF Neulasta (Pegfilgrastim).. Neulasta is a recombinant (genetically engineered) protein that stimulates the production of infection-fighting white blood cells called neutrophils that are depleted by cytotoxic chemotherapy (neutropenia).. Neulasta� is a longer-acting form of NEUPOGEN (Filgrastim), Amgen�s original white blood cell stimulating product.. G-CSF (Neupogen).. NEUPOGEN (Filgrastim), a treatment that stimulates your body to produce more white blood cells.. Epoetin (Epogen).. EPOGEN (Epoetin alfa)is a recombinant protein that works in a similar way as the body�s natural erythropoietin � a glycoprotein produced by the kidneys that circulates through the bloodstream to bone marrow, where it stimulates red blood cell production.. Health Canada Special Access Program.. The Special Access Programme (SAP) provides access to nonmarketed drugs such as oxymethelone.. The SAP authorizes a manufacturer to sell a drug that cannot otherwise be sold or distributed in Canada.. The treating doctor applies on the basis that FA is a serious or life-threatening conditions for which conventional therapies have failed, are unsuitable, or unavailable.. Family Support e-mail group.. A free email group for FA families to share day-to-day concerns and personal experiences with FA.. The place to update other families about transplant news, how to prepare for transplant, sharing concerns about your child attending school, and any other experiences that concern the world of FA.. Bereaved Families e-mail group.. The bereaved Fanconi group is a place where families can post messages to each other related to the loss of a child or a spouse who died from FA.. There are no restrictions to the messages - they can be on encouragement, survival, coping, or just sharing your feelings or need for help.. This is a special place for you.. Membership is not restricted to the bereaved only, as friends of these families may want to help or gain survival insights from them.. Please click on the newsletter you would like to view.. Spring 2000.. (7.. 7 MB PDF format).. Adobe Acrobat Reader required.. This can be downloaded.. The.. Canadian Inherited Marrow Failure Registry (CIMFR).. is a non-profit registry.. It has created an important collaborative panel focused on these disorders.. Its goal is to collect information, blood and marrow samples, thus to advance the understanding of these syndromes, promote research and establish standards of care.. Investigation of Cancer Susceptibility in.. Inherited Bone Marrow Failure Syndromes.. (IBMFS).. This is a National Cancer Institute study of the epidemiology and natural history of FA in patients and their families, focusing on potential complications such as leukemia or solid tumors, using questionnaires, thorough physical exams, laboratory studies, and age-appropriate cancer screening..

    Original link path: /en/inf91.php
    Open archive

  • Title: Fanconi Canada
    Descriptive info: About Us.. Fanconi Canada raises money for research into finding a cure and/or treatments for Fanconi Anemia.. Fanconi Canada also raises awareness among members of the general public and the medical community about Fanconi Anemia, its diagnosis and methods of treatment and provides support to affected Canadian families.. Fanconi Canada received charitable status in Canada under the Income  ...   charity has no paid staff, but is managed by dedicated volunteers.. All money raised through public donations supports medical research, while administrative expenses are funded by FA families.. The Fanconi Canada Financial Statements (PDF format).. December 2010.. December 2009.. December 2008.. December 2007.. December 2006.. December 2005.. December 2004.. December 2003.. December 2002.. December 2001.. December 2000.. May 2000..

    Original link path: /en/inf41.php
    Open archive

  • Title: Fanconi Canada
    Descriptive info: Donate Online.. Donate online by credit card through.. CanadaHelps.. , Canada's only donation portal that provides access to all of Canada's 80,000 charities.. Donate by Credit Card.. If you would like to mail or fax your donation by VISA or Mastercard, please complete, print and mail or fax.. this.. form.. Donate by Cheque.. Print, complete and mail.. form together with your cheque payable to Fanconi Canada.. Send A Fanconi Canada  ...   personalized Fanconi Canada.. Tribute Card.. (minimum donation $10).. Donate Bone Marrow - Canadian Blood Services.. Unrelated Bone Marrow Donor Registry.. locates compatible, committed, healthy, unrelated donors for Canadian bone marrow patients and for patients around the world.. Donate Stem Cells - Héma-Québec.. Héma-Québec has set up and manages Québec's.. Stem Cell Donor Registry.. : a computerized bank containing the names of Quebeckers who could eventually agree to a stem cell donation..

    Original link path: /en/inf51.php
    Open archive

  • Title: Fanconi Canada
    Descriptive info: Our privacy policy.. We recognize the importance of privacy and are committed to maintaining the accuracy, confidentiality and security of your personal information.. This privacy policy describes the personal information that we collect, how we manage that information and the circumstances under which we may disclose that information.. As this policy is subject to change due to legal and regulatory requirements, we encourage you to periodically check our website for updates to this policy.. What is personal information?.. Personal information is any information about an identifiable individual, other than an individual s business title or business contact information.. Personal information (e.. g.. name, address, age, credit card information, banking information) does not include information that cannot be associated with or tracked back to a specific individual.. Information that is publicly available, such as a telephone book listing, is also not considered to be personal information.. What information does Fanconi Canada collect?.. (1) Personally identifying information We only collect personally identifying information about donors, clients, volunteers and event participants for fundraising, public education and advocacy purposes, program and service delivery, as well as to establish, maintain and manage our relationship with you.. Your provision of personal information means that you agree and consent that we may collect, use and disclose your personal information in accordance with this privacy policy.. If you do not agree with these terms, please do not provide any personal information to us.. Failure to provide your personal information to us may prevent us from offering you the services and/or programs you have requested.. We will discuss the impacts of withdrawal of consent with you at that time.. The information we collect is the minimum amount we need to demonstrate and maintain a service, volunteer, participant, donor or program relationship with you.. This includes:.. contact and identification information, such as your name, address, telephone number and e-mail address.. donation information such as date of gift, amount of gift, the campaign you contributed to, name of spouse or partner if a joint gift.. financial information such as your payment methods and preferences, billing and banking information (credit card number and expiry date or chequing account transit numbers, in order to process your donation); for online financial transactions such as donations and event registrations, we process standard credit card information (card number, card type and expiration date).. Some of the information we collect is needed in order to satisfy the requirements of the Canada Revenue Agency (CRA) (e.. income tax receipts).. There are also circumstances where the use and/or disclosure of personal information is justified or permitted without consent.. These circumstances may include:.. where required by law or by order or requirement of a court, administrative agency or other governmental tribunal.. where we believe, upon reasonable grounds, that it is necessary to protect  ...   in your browser.. The alerts will be quite frequent, however, and may eventually become annoying.. How do we use your personal information?.. We use your personal information for fundraising, to process donations, to respond to requests for services and information, and to keep you informed about our activities.. We may also use the information you provide to us in the following ways:.. to assist in the development of new programs, events, and services.. to provide donation recipients with summary or aggregate information about our donations, programs and services.. for internal research purposes.. When do we disclose your personal information?.. We share your personal information only with volunteers who require such information to establish, manage and maintain our relationship with you.. We do not use third party service providers.. Accuracy of information.. We aim to ensure that any personal information provided is accurate, complete and current as required for the purposes for which the information is used.. Retention of personal information.. We keep personal information only as long as it is required for the reasons it was collected.. The length of time we retain information varies, depending on the program, service or event and the nature of the information, for example we generally keep financial information for 6 years, in accordance with CRA rules and regulations.. The retention period may extend beyond your relationship with us.. When your personal information is no longer required, the information is either physically destroyed or deleted.. Links to other websites from.. We provides links to other websites that may be of interest to you.. As we have no control over the content of any of these websites, these links may be updated or deleted as we deem appropriate.. Please be aware that we are not responsible for the privacy practices of other websites that we link to.. We encourage you to read the privacy statements of each and every website that requests personal information from you.. Inquiries and requests for access.. If you have any questions about this privacy policy, or would like to access your personal information, please contact our Privacy Officer.. Please note that as we cannot guarantee the security of Internet mail, all formal requests to access personal information should be made in writing.. Privacy Officer.. P.. O.. Box 38157.. Toronto, ON M5N 3A9.. Telephone: (416) 489-6393.. Fax: (416) 489-6393.. E-mail:.. admin@fanconicanada.. Please note that a fee may apply in processing your request depending on the type and volume of information requested.. If you are not happy with the way that we have handled your inquiry, or have a concern about our privacy practices that you feel we have not addressed satisfactorily, you can contact the Privacy Commissioner of Canada at:.. 112 Kent Street.. Ottawa, ON K1A 1H3.. Tel: 1 800 282-1376.. Fax: (613) 947-6850..

    Original link path: /en/inf53.php
    Open archive

  • Title: Fanconi Canada
    Descriptive info: Toronto, Ontario M5N 3A9.. Phone: 416-489-6393.. Fax: 416-489-6393..

    Original link path: /en/inf52.php
    Open archive

  • Title: Anémie de Fanconi
    Descriptive info: Qu est-ce que l AF ?.. L anémie de Fanconi (AF) a été décrite une première fois par un pédiatre suisse, Guido Fanconi en 1927.. C est une des anémies héritées des plus répandues qui entraîne une défaillance progressive et sévère de la moelle osseuse connue sous le nom d anémie aplastique.. La maladie a des conséquences dévastatrices et rend le patient faible, susceptible à des infections et à des saignements graves dûs à une coagulation insuffisante.. L AF est un trouble génétique qui survient de façon égale chez les hommes et les femmes et que l on trouve dans tous les groupes ethniques.. Bien que l AF soit tout d abord une maladie du sang, elle peut toucher n importe quel système dans l organisme.. Un patient atteint d anémie de Fanconi souffre souvent, mais pas toujours, de quelques troubles physiques décelables à la naissance et pouvant aller du plus léger au plus grave.. Les patients courent aussi un risque plus élevé de leucémie et autres cancers.. De nombreux enfants ne survivent pas jusqu'à l âge adulte.. Comment l AF est-elle diagnostiquée?.. L AF apparaît d habitude chez les enfants âgés de 3 à 12 ans.. Dans certains cas rares,  ...   AF reste une maladie incurable.. Cependant les traitements suivants sont disponibles pour traiter la défaillance de la moelle osseuse:.. *Transfusions régulières, traitement à l androgène (hormones mâles) avec ou sans stéroïdes, traitements aux facteurs de croissance sanguine (tels que G-CSF).. Bien que ces traitements puissent entraîner une rémission de la défaillance de la moelle osseuse, à longue échéance les patients risquent de ne plus y répondre, et une anémie aplastique sévère peut se manifester.. Le traitement à l androgène peut en particulier entraîner des effets secondaires sérieux.. *Greffe de moelle osseuse.. La moelle osseuse d un donneur sain est introduite dans le corps du patient après la destruction de la moelle défectueuse par chimiothérapie et radiations.. Cette procédure peut corriger de façon permanente la défaillance de la moelle.. Cependant, c est une procédure très risquée à laquelle on ne peut recourir que si un patient a un donneur compatible.. *Thérapie génique.. Pour l instant encore au stage expérimental, la thérapie génique introduit une copie normale du gène AF défectueux à l intérieur des globules du patient.. Il existe au moins huit laboratoires aux Etats-Unis, au Canada et en Europe qui travaillent en ce moment même sur la thérapie génique pour l AF..

    Original link path: /fr/anemiedefanconi.html
    Open archive



  •  


    Archived pages: 19