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    Archived pages: 60 . Archive date: 2012-10.

  • Title: Home | Fanconi Anemia Research Fund
    Descriptive info: .. Login.. home.. learn more.. research.. family support.. publications.. fundraising.. global partners.. What is fanconi anemia?.. Fanconi anemia (FA), named for Swiss pediatrician, Guido Fanconi, is a very rare, primarily recessive genetic disorder.. If both parents carry a defect (mutation) in the same FA gene, each of their children has a 25% chance of inheriting the defective gene from both parents.. When this happens, the child will have FA.. Fanconi anemia is an inherited type of anemia that leads to bone marrow failure.. Though  ...   chronic disorder that is psychologically demanding.. FA is also a cancer-prone disease, affecting patients decades earlier than the general population.. resources for families.. researchers/clinicians.. donate.. of note.. Highlights of the 24th Annual Scientific Symposium are online.. LOGIN.. 1801 Willamette Street, Suite 200, Eugene, OR 97401 | 1-888-FANCONI 1-888-326-2664 | 541-687-4658.. Copyright 2012 Fanconi Anemia Research Fund, Inc.. |.. Privacy Policy.. | Translate:.. Google Translate.. Content on this website is the property of the Fanconi Anemia Research Fund and may only be reprinted with prior authorization..

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  • Title: Fanconi Anemia Research Fund | Login
    Descriptive info: Fanconi Anemia Research Fund.. Login Required.. This page is only accessible to logged-in users with proper access privileges.. Member Registration.. Forgot your password?.. Username.. Password.. Auto-login on future visits.. Show my name in the online users list.. Script Executed in 0.. 4709 seconds.. Powered by ExpressionEngine..

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  • Title: Contact Us | Fanconi Anemia Research Fund
    Descriptive info: Contact Us.. Fanconi Anemia Research Fund, Inc.. 1801 Willamette Street, Suite 200.. Eugene, OR 97401.. Telephone: 541-687-4658.. Family Support Toll-Free Line (in United States):.. 1-888-FANCONI or 1-888-326-2664.. Fax: 541-687-0548.. E-mail: info@fanconi.. org.. The Fanconi Anemia Research Fund is a 501(c)(3) nonprofit organization.. All donations are tax-deductible: Tax ID #93-0995453.. Your Email:.. Subject:.. Message:.. Please enter the text from the image below:..

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  • Title: How You Can Help | Fanconi Anemia Research Fund
    Descriptive info: How You Can Help.. Since 1989, donations have helped move Fanconi anemia, which is fatal, from a little-known disease with few options to a disease with treatments that now buy precious time for FA patients.. When you donate to the Fund your donations also have an impact on the lives of millions, as key genetic discoveries indicate potential links between Fanconi anemia and cancer development in the general population, such as breast, ovarian and pancreatic cancers.. All donations are tax deductible.. You will receive a letter of thanks to use as a receipt for tax purposes.. The Fanconi Anemia Research Fund is a 501(c)(3) tax-exempt organization.. Our tax identification number is 93-0995453.. Donate online:.. You may select this option to make a direct donation to FARF.. Network for Good.. :.. Network for Good allows you to set  ...   at 1-888-FANCONI (888-326-2664) within the United States.. Donate by mail:.. Please send a check payable to Fanconi Anemia Research Fund to the following address:.. Other ways to give:.. Gifts to celebrate an occasion:.. If you are celebrating a birthday, anniversary, graduation, marriage, birth, or other noteworthy event, consider asking that donations be made to the Fund in lieu of gifts.. Gifts to commemorate a loved one:.. Consider asking that a donation to the FA Research Fund be made in memory of a loved one.. Bequests:.. If you are preparing or reviewing your Last Will and Testament, consider making a bequest to the Fund.. Matching Gifts:.. Many employers will match the charitable gift of an employee.. This is an excellent way to double your donation.. Please see our.. privacy policy.. for more details on how we protect your information..

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  • Title: What is Fanconi anemia? | Fanconi Anemia Research Fund
    Descriptive info: What is Fanconi anemia?.. Fanconi anemia (FA) is one of the inherited anemias that leads to bone marrow failure (aplastic anemia).. It is primarily a recessive disorder: if both parents carry a defect (mutation) in the same FA gene, each of their children has a 25% chance of inheriting the defective gene from both parents.. Scientists have now discovered 15 FA or FA-like genes.. These genes account for over 95% of all known FA patients.. Some patients do not appear to have mutations in these 15 genes, so we anticipate that additional FA genes will be discovered in the future.. FA occurs equally in males and females.. It is found in all ethnic groups.. The current median lifespan for a patient with FA is  ...   patients are extremely likely to develop a variety of cancers and at a much earlier age than patients in the general population.. Patients who have had a successful bone marrow transplant and are therefore cured of the blood problem associated with FA still must have regular examinations to watch for signs of cancer.. For more information about Fanconi anemia, view our.. FA Fact Sheet.. what is the fanconi anemia research fund?.. Lynn and Dave Frohnmayer started the Fanconi Anemia Research Fund, Inc.. in 1989 to find effective treatments and a cure for Fanconi anemia and to provide education and support services to affected families worldwide.. Learn more.. Read about the.. history.. of the Fanconi Anemia Research Fund.. FA Diagnosis.. FA Relationship to Cancer.. FA Treatment..

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  • Title: Research | Fanconi Anemia Research Fund
    Descriptive info: Research.. Since its inception in 1989, the Fanconi Anemia Research Fund has sponsored 177 research grants in 53 laboratories worldwide.. Donors to the Fund have seen their gifts multiply many fold in that pilot grants from the Fund have enabled many FA researchers to go on to receive major grants for FA research from the National Institutes of Health and other funding sources worldwide.. Donations to the Fund have helped us advance FA science more rapidly than ever thought possible.. For example, no FA genes had been identified in  ...   unrelated donor have risen from 0% in 1989 to over 87% today in some transplant centers that specialize in Fanconi anemia.. Matched sibling donor transplants have risen from a 35% success rate to close to 100% today in those centers.. The Fund encourages researchers to apply for sponsorship of research that will advance the science relating to Fanconi anemia.. View our.. Calendar of Upcoming Meetings and Symposia.. Annual Symposium.. Fanconi Anemia 101: A Primer for Scientists.. Grant Applications.. Research Highlights.. Research Materials.. Research Priorities.. Scientific Advisory Board.. Supported Research..

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  • Title: Family Support | Fanconi Anemia Research Fund
    Descriptive info: Family Support.. The Fanconi Anemia Research Fund is committed to providing education and support services to families around the world affected by FA.. The Fund sponsors a variety of programs and services to assist the FA patients and their families who register with us (at no cost).. To register, or to learn more about the Fund s family support program and free services, please contact our.. Director of Family Support Services.. , Teresa Kennedy.. Family Support Network.. E-Groups:.. The Fanconi Anemia Research Fund manages two online Support Groups, which allows adults with FA and families affected by FA to exchange questions and information with others affected by FA.. Many families find the E-group to be a valuable and readily available source of information to help them deal with the diagnosis and effects of Fanconi anemia.. To request to join an E-group, contact Teresa Kennedy, our Director of Family Support Services: E-mail:.. teresa@fanconi.. , Telephone: 541-687-4658, Toll-free within the United States: 1-888-FANCONI (888-326-2664).. International Family Support Network:.. International families may wish to access additional support within their  ...   activities in a supportive environment.. In addition, the Fund periodically sponsors.. FA information and support meetings.. to educate and inform families of the latest treatments for FA, resources for.. teens with FA.. and.. meetings for adults with FA.. Tumor Testing, Clinical Trials, and Other Research Opportunities:.. Finding more effective treatments and a cure for FA depends on research.. FA patients are encouraged to consider utilizing.. tumor testing services.. , participating in.. clinical trials and other research opportunities.. These opportunities are designed to further the study of FA and, in some cases, provide cutting-edge treatment to patients.. In addition, all families affected by FA are asked to contribute to FA research through research sample donation.. The.. National Disease Research Interchange (NDRI).. is the Fund s partner in biospecimen sample collection.. Additional Resources.. The Fund publishes an.. International Treatment and Testing Resource Guide.. for families.. Family web pages.. connect to individual FA patients websites.. Annual Family Meeting.. FA Information and Support Meetings.. Family Education and Support Services Registration Form.. Family Pages.. Meetings for Adults with FA.. Teens with FA..

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  • Title: Publications | Fanconi Anemia Research Fund
    Descriptive info: Publications.. The Fanconi Anemia Research Fund is dedicated to providing meaningful, up-to-date publications to help educate affected families and clinicians about FA.. Available publications include:.. FA Courier.. helps to connect the FA community to current FA-related research projects.. FA Courier.. is published annually.. outlines the process for submitting much-needed research samples to aid in the fight against FA.. lists current research projects and clinical trials seeking participants from the FA community.. informs scientists/researchers of available research samples and materials.. Fanconi Anemia: A Handbook for Families and their Physicians (Third Edition, 2000).. This handbook is also available in Spanish and French:.. Anemia de Fanconi: Un Manual Para Las Familias y sus Medicos.. (Tercera edicion, 2000).. Anemie de Fanconi: Manuel pour les familles et leur médecin (Troisième édition, publiée en mars 2000).. FA Family Newsletter.. The Fanconi Anemia Research Fund publishes the.. FA Family Newsletter.. twice per year.. The Newsletter contains articles on FA-related research, scientific information about FA, and stories of families coping with  ...   they work to secure optimal treatment through consultation and appropriate referral.. This publication includes detailed information on treatment and testing centers, including addresses, physicians and services offered.. The resources in this guide are not inclusive or endorsed by the Fanconi Anemia Research Fund, Inc.. SCC Fact Sheet.. Regular screenings for oral cancer are critically important for FA patients.. To help you communicate the urgency of this issue with health care professionals, we ve prepared two flyers one for dentists and one for ear, nose and throat doctors (ENTs).. The flyers include specific instructions about how to conduct a thorough oral cancer screening exam.. We recommend that you take a flyer with you to every visit with your ENT physician and dentist.. You can request color copies from our office or download the files in a variety of languages.. here.. To request a publication, please.. contact us.. Family Newsletter.. Family handbook.. Guidelines for Diagnosis and Management / Anemia de Fanconi: Lineamientos para diagnostico y manejo..

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  • Title: Fundraising | Fanconi Anemia Research Fund
    Descriptive info: Fundraising.. Fanconi anemia research cannot move forward without funding.. Great advances in understanding this disease have been made, but more needs to be done to find a cure.. How can you help?.. Donate to the Fund.. For more information on how to help raise funds for FA research and family support, review.. ways to  ...   FA Marketplace.. , where 100% of merchant proceeds help support the efforts of the Fanconi Anemia Research Fund.. Make use of online.. fundraising tools.. like imATHLETE to help streamline your fundraising efforts.. Learn more about upcoming fundraising events in your area by clicking on our.. Fundraising Events Calendar.. Fundraising Materials.. Fundraising Tools.. Ways to fundraise..

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  • Title: Global Partners | Fanconi Anemia Research Fund
    Descriptive info: Global Partners.. The Fanconi Anemia Research Fund, Inc.. was founded in the United States in 1989.. In an effort to recognize and respond to the global reach of this disease, the Fund is pleased to partner informally with a number of international groups providing fundraising and support for families affected by Fanconi anemia.. Listed alphabetically by country, some of these groups include:.. Belarus:.. Belorussian translation of the FARF website.. Belgium:.. Canada:.. France:.. Germany:.. Ireland:.. South Africa.. Spain:.. The Netherlands:.. United Kingdom:.. In addition, support groups for families affected by Fanconi anemia can be found throughout the world.. for contact information..

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  • Title: Privacy policy | Fanconi Anemia Research Fund
    Descriptive info: Privacy policy.. The Fanconi Anemia Research Fund [the Fund] respects the privacy of each individual who uses the Fund s website.. To safeguard your privacy, we have adopted the following privacy policy.. Normal website usage.. The Fund has a strong commitment to Internet privacy.. You can visit all portions of our site without revealing your identity or any personal information.. Collection of personally identifiable information.. The Fanconi Anemia Research Fund may collect e-mail addresses and other personally identifiable data about visitors when such data is voluntarily submitted to our site.. For example, our site may use information collection forms for visitors to request information or to register for the FA Annual Family Meeting or a particular conference.. All such information is collected and stored in a manner appropriate to the nature of the data.. Community Tools.. We provide space on our website for  ...   User Information.. The Fanconi Anemia Research Fund does not sell, exchange or otherwise disclose user information outside the organization.. Cookies.. Like most websites, the Fanconi Anemia Research Fund may place a cookie, or small file, in the browser files of a visitor s computer.. We do not use cookies to track your movement among different web sites and do not exchange cookies with other entities.. Links to Other Sites.. Our site provides links to other web sites of relevance to Fanconi anemia.. The Fanconi Anemia Research Fund is not responsible for the actions of linked sites.. We encourage you to review the privacy policy of each site you visit.. Privacy Policy Changes.. We will post any changes to our privacy policy on this website.. Questions or Concerns.. If you have questions about our website privacy practices, feel free to contact us at.. info@fanconi..

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    Archived pages: 60