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    Archived pages: 51 . Archive date: 2012-12.

  • Title: Family Voices of Minnesota - Family Voices of Minnesota
    Descriptive info: .. Welcome!.. Bienvenido.. ,.. Chào mừng.. zoo siab txais tos.. We are families of children, youth and young adults with special health care needs and disabilities helping other families navigate systems of care.. Resources to Help Pay for Needed Services.. Parent to Parent.. Other Helpful.. Information.. Advocating for Your Child.. in the Health Care System.. Home.. Contact Us.. About Us.. Paying for Needed Services.. Links to Helpful Information.. Advocating  ...   Para Español.. "Traducelo Ahora!".. “Presione aquí para ver esta página de Internet en español y para tener acceso a una herramienta gratuita de traducción de correo electrónico en español con base en la red”.. Support the important work of Family Voices of Minnesota by donating now!.. Print.. |.. Sitemap.. Recommend this page.. © Family Voices of Minnesota.. This website was created using.. 1 1 MyBusiness Site.. Login.. Logout.. Edit page..

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  • Title: Paying for Needed Services - Family Voices of Minnesota, connecting families for information to navigate systems of care and peer support
    Descriptive info: Links and Resources.. Medical Assistance for Children with Special Health Care Needs or Disabilities (MA-TEFRA):.. Medical Assistance-TEFRA (MA-TEFRA) is for children with disabilities whose parents have too much income to qualify for other Minnesota Health Care Programs or who qualify but the cost would be too high, learn more.. here.. Bridge to Benefits,.. information about free or low cost health care, paying for child care, free or reduced-cost school meals, and money to help buy food:.. www.. bridgetobenefits.. org.. Cuidadode Sauld.. : A Spanish web-site to help consumers take control of their health care:.. CuidadodeSalud.. gov.. MinnesotaHelp.. info.. is an online directory of services designed to help people in Minnesota identify resources such as human services, information and referral, financial assistance, and other forms of aid and assistance within Minnesota.. It is especially rich in resource information for seniors and their caregivers; people with disabilities and their caregivers; parents and families; and low income people:.. minnesotahelp.. info/public/.. Family Village.. web-site includes informational resources on specific diagnoses, communication connections, adaptive products and technology, adaptive recreational activities, education, worship, health issues, disability-related media and literature, and much, much more.. familyvillage.. wisc.. edu/.. Organizations that Provide Information and Advocacy for Children and Youth with Special Health Care Needs and Disabilities:..  ...   Paul area.. ) discapacitados abriendose caminos 400 Southview Boulevard, South St.. Paul, MN 55075,.. (612) 293-1748.. , E-mail:.. discapacitados@comcast.. net.. Partners in Policymaking,.. Government Training Service 2233 University Avenue West, Suite 150, St.. Paul, MN 55114 (651) 222-7409, ext.. 205,.. Web:.. mngts.. Children with Special Health Needs.. Program.. at the Minnesota Department of Health: 85 East 7th Place, PO Box 64882, St.. Paul, MN 55164-0882.. (651) 201-3650.. (800) 728-5420,.. health.. state.. mn.. us/divs/fh/mcshn/index.. htm.. Bright Futures for Families.. is a national initiative for families and communities to promote and improve the health and well-being of children of all ages.. There are a number of materials and information on available on this site including the Family Pocket Guide: Raising Healthy Infants, Children and Adolescents The Family Pocket Guide covers: How to choose and work with a health care provider How your child grows from birth to age 21 What will happen at each health care visit What to expect when your child gets older and more.. http://www.. brightfuturesforfamilies.. Minnesota Children's Hospitals.. Children’s Hospitals and Clinics of Minnesota:.. childrensmn.. org/.. Gillette Children’s Specialty Healthcare:.. gillettechildrens.. Hennepin County Medical Center:.. hcmc.. org/index.. asp.. Shriners Hospital:.. shrinershospitalsforchildren.. org/Hospitals/Locations/TwinCities.. aspx.. University of Minnesota Amplatz Children’s Hospital:.. uofmchildrenshospital.. Insurance.. Financial Information.. Insurance Information..

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  • Title: Parent to Parent
    Descriptive info: "The first time I felt less scared in this new world of specials needs was when we were connected to another family.. ".. Parent to Parent matches families of children or youth with special health care needs or disabilities with an experienced Volunteer Support Parent who has received specialized training.. Parent to Parent is a valuable source of assistance and information for parents because they can talk with an experienced parent who really understands.. Families look to Parent to Parent for help such as:.. Resources.. Financial supports.. Similar experiences.. A listening ear.. Please Consider Becoming a Volunteer Support Parent.. Are you the parent or primary caregiver of a child, youth or young adult with special health care needs or disabilities? Would you like to provide support and information to another family who has had similar experiences?.. Family Voices of Minnesota’s Parent to Parent Program matches trained volunteer support parents with parents who would like to talk with another parent who has had similar experiences.. Here is what parents had to say about the Parent to Parent Support Parent Training when asked what was most helpful:.. “All of it was helpful”.. “Sharing stories”.. “Being able to practice calls with another parent”.. “Having the presenters be parents was  ...   sent.. You have entered the following data:.. REFERRAL FORM.. Please correct your input in the following fields:.. Error while sending the form.. Please try again later.. Name of Parent/Family Member seeking a match:.. *.. E-mail address:.. Parent's Telephone number:.. If you are referring a parent/family to parent to parent did you receive verbal permission to share the parents/family members name and contact information with Family Voices of MN? Please check yes or no.. Yes.. No.. If you are a referring a parent/family member for a Parent to Parent match please give us your name, title, organization or agency and contact information.. Additional information you would like to share:.. Note.. : Fields marked with.. *.. are required.. What Does the Research Say.. pdf.. Adobe Acrobat document [165.. 9 KB].. The Importance of Parent to Parent.. Adobe Acrobat document [238.. 3 KB].. Family Voices of Minnesota's Parent to Parent program is the Minnesota member of the Parent to Parent USA Alliance.. We are committed to using the Parent to Parent USA endorsed practices for providing parent to parent support and information, based on over 30 years of parent to parent research.. To learn more about Parent to Parent USA:.. p2pusa.. org/p2pusa/sitepages/p2p-home.. Family Stories.. The History of Parent to Parent..

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  • Title: Links to Helpful Information
    Descriptive info: eful Web Sites for Parents of Children.. Useful Web Sites for Parents Whose Children or Youth.. Have Special Health Care Needs or Disabilities.. :.. edu/websites.. html.. Bright Futures for Families is a national initiative for families and communities to promote and improve the health and well-being of children of all ages.. We offer resources for families based on the award winning, federally supported Bright Futures initiative, developed through the support of public health, non-profit, and corporate organizations.. To access the Bright Furtures publications:.. org/home.. shtml.. Centers for Disease Control.. Information for Parents:.. cdc.. gov/parents/infants/index.. National Center on Birth Defects and Developmental Disabilities is dedicated to helping people live to the fullest.. Much of our work focuses on protecting people who are especially vulnerable to health risks - babies, children, people with blood disorders, and people with disabilities:.. gov/ncbddd/index.. Information about children with special health care needs from the Center for Cultural Competence:.. http://nccc.. georgetown.. edu/projects/cyshcn.. Emergency Care for Children with Special Health Care Needs, from the American College of Emergency Physicians:.. emergencycareforyou.. org/YourHealth/ChildhoodStudentEmergencies/Default.. aspx?id=26140.. Disability Specific Organizations.. Attention Deficit Disorder,.. To identify an ADD group in your state or locality, contact either: Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD) 8181 Professional Place, Suite 150, Landover, MD 20785,.. (301) 306-7070.. (800) 233-4050.. (Voice mail to request information packet), Web:.. chadd.. Attention Deficit Disorder Association (ADDA).. P.. O.. Box 543, Pottstown, PA 19464-0543,.. (484) 945-2101.. , Web:.. add.. Autism.. Autism Society of Minnesota, 2380 Wycliff Street, Suite 102, St.. (651) 647-1083.. info@ausm.. ausm.. Blind/Visual Impairments.. National Federation of the Blind of Minnesota, 100 E.. 22nd Street, Minneapolis, MN 55404-2514,.. (612) 872-0100.. blindinc.. American Foundation for the Blind - Midwest,  ...   (MOFAS),.. mofas.. ,.. 1-866-90-MOFAS (66327).. Gastrointestinal Disorders:.. The Oley Foundation provides information to families and individuals receiving nutrition via intravenous or G or J tube feeding:.. oley.. , other resources: Short Bowel Syndrome Foundation:.. shortbowelfoundation.. org/,.. Crohns and Colitis Foundation:.. ccfa.. , United Ostomy Associations of America, Inc.. :.. uoaa.. Hearing Loss,.. Minnesota Hands and Voices:.. mnhandsandvoices.. 709 University Avenue W, St.. Paul, MN 55104-4804,.. mnhv@lifetrackresources.. Voice:(651) 265-2435, Toll Free: 1-866-DHOHKID.. Learning Disabilities,.. Learning Disabilities Program - Children's Home Society Family Service 2230 Como Avenue, St.. Paul, MN 55108,.. (651) 222-0311.. (800) 982-2303.. (in MN) Web:.. chsfs.. Learning Disabilities Association of Minnesota, 5354 Parkdale Drive, Suite 200 St.. Louis Park, MN 55416,.. (952) 922-8374.. ,Web:.. ldaminnesota.. Mental Health,.. Mental Health Association of Minnesota 2021 E.. Hennepin Avenue, Suite 412, Minneapolis, MN 55413 (612) 331-6840,Web:.. mentalhealthmn.. NAMI-Minnesota.. (National Alliance for the Mentally Ill), 800 Transfer Road, Suite 7A St.. (651) 645-2948.. (888) 473-0237.. namimn.. Minnesota Association for Children's Mental Health.. , 165 Western Avenue, Suite 2 St.. Paul, MN 55102,.. (651) 644-7333.. (800) 528-4511.. macmh.. Speech and Hearing,.. Minnesota Speech-Language-Hearing Association P.. Box 26115, St.. Louis Park, MN 55426,.. (952) 920-0787.. (800) 344-8808.. msha.. Spina Bifida.. Association of Minnesota, P.. Box 29323 Brooklyn Center, MN 55429-0323,.. (651) 222-6395.. sbaa.. Tourette Syndrome,.. Tourette Syndrome Association of Minnesota, Inc.. tsa-mn.. , Andrea Robinson: 612-481-8635.. Child Care Resources.. Disability Information.. Equipment.. Family Support and Advocacy.. Fatherhood Resources.. Food Support.. Free or Low-Cost Dental Care.. Free or Low-Cost Health Care.. Health Care.. Hearing.. Housing.. Job Resources.. Legal.. Medication/Prescription Drugs.. Mental Health.. Recreation.. Resources for Families in the Military.. Technology.. Telephone Assistance.. State Programs and Agencies.. National Programs and Agencies.. Spanish Language Resources..

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  • Title: Advocating for your Child in the Health Care System
    Descriptive info: Family Voices of Minnesota.. works with.. health care clinics to help them determine their level of implementing patient-and-family-centered care.. and provides technical assistance to make improvements.. Family Voices of Minnesota staff has a combined 60 years of experience in patient-and-family-centered care.. Family Voices staff conducts training and presentations for health professionals and consumers/families about patient-and-family-centered care.. What is patient/family-centered health care?.. Patient-and-family-centered care assures the health and well-being of children and their families through a respectful family-professional partnership.. It honors the strengths, cultures, traditions and expertise that everyone brings to this relationship.. Family-Centered Care is the standard of practice which results in high quality services.. The foundation of  ...   s/he assumes a partnership role.. Everyone respects the skills and expertise brought to the relationship.. Trust is acknowledged as fundamental.. Communication and information sharing are open and objective.. Participants make decisions together.. There is a willingness to negotiate.. How can you use your expertise?.. Participate.. in a patient/family advisory committee at the clinic or hospital that you use frequently.. If they don't have patient/family advisory committees - help them start one.. Family-Centered Care Tools.. The Institute for Family-Centered Care offers many resources, tools and information about patient/family-centered care:.. familycenteredcare.. Do You Have a Primary Doctor?.. Choosing a Doctor.. Creating a Care Plan.. Patient Safety.. Serving on Healthcare Committees.. Partnerships..

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  • Title: Contact Us
    Descriptive info: Would you like to be connected with another parent who has similar experiences to yours?.. Would you like to be part of the Family Voices network?.. Do you have questions about services and resources for families of children with special health care needs and disabilities?.. T.. hen please contact us.. How can we help you?.. Your message:.. Name:.. Street Address:.. Street Address 2:.. City:.. State or province:.. Zip or postal code:.. Your e-mail address:.. and phone number:.. To contact us by phone please call toll-free: 866-334-8444..

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  • Title: About Us
    Descriptive info: Family Voices is the Minnesota Resource for the Latest Information on What is Happening in Health Care and How it Affects You and Your Family!.. Family Voices of Minnesota's Mission.. Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities.. Through our state and national networks, we provide families tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and  ...   Do?.. Provides families information about community resources and supports.. Connects families of children with special health care needs and disabilities with one another.. Promotes patient and family-centered care including family and youth involvement in program and policy development, implementation and evaluation.. Promotes cultural competence across all systems.. Collaborates with other health and disability organizations and state agencies.. Family Voices of Minnesota Staff.. Board of Directors.. Become a Member.. History.. Family Voices of MN Programs.. Newsletters..

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  • Title: Youth and Young adults
    Descriptive info: Insurance Information for Youth and Young Adults.. The Young Person's Guide to Health Insur[.. ].. Adobe Acrobat document [421.. 0 KB].. Information for Youth and Young Adults.. Kids as Self Advocates:.. fvkasa.. Kids As Self Advocates (KASA) is a national, grassroots project created by youth with disabilities for youth and is part of the Family Voices Network.. We are teens and young adults with disabilities speaking out.. KASA knows youth can make choices and advocate for themselves if they have the information and support they need.. We are leaders in our communities, and we help spread helpful, positive information among our peers to increase knowledge around various issues.. We also help health care professionals, policymakers and other adults in our communities understand what it is like to live our lives and we participate in discussions about how to help each other succeed.. Courage Center.. has a sports and rec department with many programs for youth as well as adults.. Many of their programs give not only the youth the opportunity to connect with other youth with disabilities but families connect while watching their kid participate..  ...   as pertaining to youth with special health care needs:.. gottransition.. Starbright World:.. Starbright World is a virtual hangout where you can build on existing friendships or create new ones, from home or from the hospital.. Starbright World is an online social network where teens (ages 13 to 20) who have serious medical conditions, and siblings of seriously ill teens, can connect with each other via moderated chat rooms, games, bulletin boards, videos, and more:.. starbrightworld.. org/default_login.. aspx?ReturnURL=%2fhome.. Wilderness Inquiry:.. Wilderness Inquiry provides outdoor adventure throughout North America and the World.. Our trips are accessible to everyone, regardless of age, background or ability.. Join the thousands of people who have paddled and hiked with us since 1978:.. wildernessinquiry.. For more information about recreational opportunities click.. JobTIPS.. is a free, Web-based program that helps youth with ASD or other disabilities develop and maintain skills needed for successful employment.. The site offers resources for educators, job coaches, clinicians and transition coordinators who support individuals with ASD as they transition out of high school and into vocational education or other post-secondary activities.. For more information visit.. https://www.. disability.. gov/employment/news_%26_events..

    Original link path: /youth-and-young-adults/
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  • Title: Health Reform - Family Voices of Minnesota, connecting families for information to navigate systems of care and peer support
    Descriptive info: The Affordable Care Act has already given Americans more freedom and control over their health care choices.. Read more about how the Affordable Care Act is improving health care for Americans like you.. Watch the video.. Learn More About the Affordable Care Act and how it Benefits Families.. Families with Children.. families-with-children-top5.. Adobe Acrobat document [7.. 1 MB].. Want a Simple Explanation of Health Reform?.. Watch this 9 minute video:.. This short movie has three major sections: explaining problems in the current health care system, short-term changes that will take place between now and 2014, and major provisions that will  ...   Sheets.. Families USA is a national nonprofit, non-partisan organization dedicated to the achievement of high-quality, affordable health care for all Americans.. Families USA includes a grassroots advocates' network of organizations of which Family Voices is part.. The following are links to fact sheets created and made available by Families USA:.. Pre-Existing-Conditions.. Adobe Acrobat document [281.. Your-Right-to-Appeal.. Adobe Acrobat document [292.. 8 KB].. GettingCoveredYoungAdultFlyer.. Adobe Acrobat document [204.. 6 KB].. Emergency-Care.. Adobe Acrobat document [172.. 5 KB].. Choosing-your-Doctor.. Adobe Acrobat document [277.. Annual-and-Lifetime-Limits.. Adobe Acrobat document [234.. 2 KB].. Making sure your policy can’t be cance[.. Adobe Acrobat document [173.. 7 KB]..

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  • Title: Traducelo Ahora - Family Voices of Minnesota, connecting families for information to navigate systems of care and peer support
    Descriptive info: Pasos a tomar para ingresar al enlace de “Tradúcelo Ahora”:.. Vaya a esta página.. traduceloahora.. Y luego pulse donde dice “.. INGRESAR.. ”.. Después pulse donde dice: “Si no se ha registrado en el sistema, puede hacerlo en nuestra página de.. registro.. En Estado/Provincia coloque NJ; en ciudad coloque Newark.. Complete su información personal, y donde dice.. Escuela/Organización.. seleccione.. Statewide Parent Advocacy Network (SPAN).. Donde se le pide la.. Clave del Proyecto.. coloque.. NJTRADUCELO.. (en mayúsculas).. Después se le pide:.. Nombre del Usuario.. (se recomienda utilizar su correo electrónico aquí) y.. Palabra Clave.. (utilice una clave que usted pueda recordar).. Necesitamos que las personas que se inscriban utilicen su correo electrónico como Nombre del Usuario para poder contactarles periódicamente a fin de darles las actualizaciones.. ¡Ya está casi listo!.. Cuando haya completado el proceso descrito anteriormente, usted recibirá un correo electrónico de este servicio, confirmándole su Nombre de Usuario (User ID) y su Palabra Clave (Pass Code).. Por favor, guarde este correo electrónico para su referencia.. ¡Listo!.. Traducción de páginas de Internet:.. 1.. Ahora usted podrá traducir sitios en la red (Internet).. Haga la prueba- Coloque  ...   a.. ).. Una vez recibido, su correo es traducido y enviado a todos los destinatarios del correo original, incluyéndole una copia al remitente (usted).. Tomará unos cinco minutos entre el tiempo en que el correo es recibido y el tiempo en que el correo traducido es enviado, con el texto tanto en inglés como en español (el original que usted envió).. 4.. Usted deberá ingresar (log in) al programa para poder realizar las funciones descritas.. 5.. Usted permanecerá conectado (logged) a menos que usted de desconecte.. Recuerde que este servicio no traduce anexos (attachments).. Usted tendrá que copiar y pegar el cuerpo del anexo como si fuese un simple correo electrónico para que este sea traducido.. Conectándose en Línea sin un Computador o sin Acceso a Internet.. Mini-Guía para Padres sobre como Acceder a los Recursos de Internet para Ayudar a su Hijo(s).. Family Voices of Minnesota Parent handb[.. Microsoft Word document [30.. Getting On Line Without A Computer or Internet Access at Home in English.. A Parents’ Mini-Guide to Accessing Internet Resources to Help Your Child(ren).. Family Voices of Minnesota English Paren[.. Microsoft Word document [41..

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  • Title: Family Voices of Minnesota - Family Voices of Minnesota
    Descriptive info: Center of Excellence for Quality Measures for Children with Complex Needs..

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  • Archived pages: 51